Perceived stigma in Spasmoic Torticollis
Identifieur interne : 004727 ( Main/Exploration ); précédent : 004726; suivant : 004728Perceived stigma in Spasmoic Torticollis
Auteurs : Ilias Papathanasiou [Royaume-Uni] ; Lea Macdonald [Royaume-Uni] ; Renata Whurr [Royaume-Uni] ; Marjan Jahanshahi [Royaume-Uni]Source :
- Movement Disorders [ 0885-3185 ] ; 2001-03.
Descripteurs français
- Pascal (Inist)
- Wicri :
- topic : Homme, Impact social.
English descriptors
- KwdEn :
- Aged, Attitude to Health, Evaluation, Female, Human, Humans, Male, Middle Aged, Patient, Perception, Quality of Life, Questionnaire, Questionnaires, Self Concept, Social impact, Spasmodic torticollis, Stereotyping, Stigma, Torticollis (psychology), perceived stigma, spasmodic torticollis, stigma questionnaire.
- MESH :
- psychology : Torticollis.
- Aged, Attitude to Health, Female, Humans, Male, Middle Aged, Quality of Life, Questionnaires, Self Concept, Stereotyping.
Abstract
Little is known about the “stigmatizing” effects of Spasmodic Torticollis—a condition that produces physical disfigurement. This is important in understanding the social dimensions of this disorder. This study examined the presence, the dimensions, and the degree of perceived stigma in patients with Spasmodic Torticollis. The study was completed in two stages. In the first stage, ten patients were interviewed to identify the effects of their condition on their social interactions. In the second stage, a self‐rating measure of stigma and questions about the impact of the condition on the patients' lives were devised. Perceived stigma was defined as avoidance of others, avoidance by others, self‐consciousness, feeling unattractive, feeling apologetic, and feeling different from others. The questionnaires were sent to one hundred patients. The majority of the patients perceived “some” or “severe” stigma. Stigma was found to affect the patients' social, private, and working lives. It is suggested that stigma in Spasmodic Torticollis needs to be considered as a parameter relevant to the clinical management of these patients. © 2001 Movement Disorder Society.
Url:
DOI: 10.1002/mds.1055
Affiliations:
Links toward previous steps (curation, corpus...)
- to stream Istex, to step Corpus: 001B59
- to stream Istex, to step Curation: 001B59
- to stream Istex, to step Checkpoint: 002F54
- to stream Main, to step Merge: 006C09
- to stream PascalFrancis, to step Corpus: 002A23
- to stream PascalFrancis, to step Curation: 000298
- to stream PascalFrancis, to step Checkpoint: 002935
- to stream Main, to step Merge: 006E34
- to stream PubMed, to step Corpus: 003D80
- to stream PubMed, to step Curation: 003D80
- to stream PubMed, to step Checkpoint: 003C77
- to stream Ncbi, to step Merge: 000471
- to stream Ncbi, to step Curation: 000471
- to stream Ncbi, to step Checkpoint: 000471
- to stream Main, to step Merge: 006979
- to stream Main, to step Curation: 004727
Le document en format XML
<record><TEI wicri:istexFullTextTei="biblStruct"><teiHeader><fileDesc><titleStmt><title xml:lang="en">Perceived stigma in Spasmoic Torticollis</title><author><name sortKey="Papathanasiou, Ilias" sort="Papathanasiou, Ilias" uniqKey="Papathanasiou I" first="Ilias" last="Papathanasiou">Ilias Papathanasiou</name></author><author><name sortKey="Macdonald, Lea" sort="Macdonald, Lea" uniqKey="Macdonald L" first="Lea" last="Macdonald">Lea Macdonald</name></author><author><name sortKey="Whurr, Renata" sort="Whurr, Renata" uniqKey="Whurr R" first="Renata" last="Whurr">Renata Whurr</name></author><author><name sortKey="Jahanshahi, Marjan" sort="Jahanshahi, Marjan" uniqKey="Jahanshahi M" first="Marjan" last="Jahanshahi">Marjan Jahanshahi</name></author></titleStmt><publicationStmt><idno type="wicri:source">ISTEX</idno><idno type="RBID">ISTEX:45F526F16968B1ECFE812C66F81E7B0047B57565</idno><date when="2001" year="2001">2001</date><idno type="doi">10.1002/mds.1055</idno><idno type="url">https://api.istex.fr/document/45F526F16968B1ECFE812C66F81E7B0047B57565/fulltext/pdf</idno><idno type="wicri:Area/Istex/Corpus">001B59</idno><idno type="wicri:Area/Istex/Curation">001B59</idno><idno type="wicri:Area/Istex/Checkpoint">002F54</idno><idno type="wicri:doubleKey">0885-3185:2001:Papathanasiou I:perceived:stigma:in</idno><idno type="wicri:Area/Main/Merge">006C09</idno><idno type="wicri:source">INIST</idno><idno type="RBID">Pascal:01-0333117</idno><idno type="wicri:Area/PascalFrancis/Corpus">002A23</idno><idno type="wicri:Area/PascalFrancis/Curation">000298</idno><idno type="wicri:Area/PascalFrancis/Checkpoint">002935</idno><idno type="wicri:doubleKey">0885-3185:2001:Papathanasiou I:perceived:stigma:in</idno><idno type="wicri:Area/Main/Merge">006E34</idno><idno type="wicri:source">PubMed</idno><idno type="RBID">pubmed:11295781</idno><idno type="wicri:Area/PubMed/Corpus">003D80</idno><idno type="wicri:Area/PubMed/Curation">003D80</idno><idno type="wicri:Area/PubMed/Checkpoint">003C77</idno><idno type="wicri:Area/Ncbi/Merge">000471</idno><idno type="wicri:Area/Ncbi/Curation">000471</idno><idno type="wicri:Area/Ncbi/Checkpoint">000471</idno><idno type="wicri:doubleKey">0885-3185:2001:Papathanasiou I:perceived:stigma:in</idno><idno type="wicri:Area/Main/Merge">006979</idno><idno type="wicri:Area/Main/Curation">004727</idno><idno type="wicri:Area/Main/Exploration">004727</idno></publicationStmt><sourceDesc><biblStruct><analytic><title level="a" type="main" xml:lang="en">Perceived stigma in Spasmoic Torticollis</title><author><name sortKey="Papathanasiou, Ilias" sort="Papathanasiou, Ilias" uniqKey="Papathanasiou I" first="Ilias" last="Papathanasiou">Ilias Papathanasiou</name><affiliation wicri:level="1"><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>National Hospital for Neurology and Neurosurgery</wicri:regionArea></affiliation><affiliation wicri:level="4"><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Clinical Neurology, Institute of Neurology, University of London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName><orgName type="university">Université de Londres</orgName></affiliation></author><author><name sortKey="Macdonald, Lea" sort="Macdonald, Lea" uniqKey="Macdonald L" first="Lea" last="Macdonald">Lea Macdonald</name><affiliation wicri:level="4"><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>St George's Hospital Medical School, University of London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName><orgName type="university">Université de Londres</orgName></affiliation></author><author><name sortKey="Whurr, Renata" sort="Whurr, Renata" uniqKey="Whurr R" first="Renata" last="Whurr">Renata Whurr</name><affiliation wicri:level="1"><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>National Hospital for Neurology and Neurosurgery</wicri:regionArea></affiliation><affiliation wicri:level="4"><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Clinical Neurology, Institute of Neurology, University of London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName><orgName type="university">Université de Londres</orgName></affiliation></author><author><name sortKey="Jahanshahi, Marjan" sort="Jahanshahi, Marjan" uniqKey="Jahanshahi M" first="Marjan" last="Jahanshahi">Marjan Jahanshahi</name><affiliation wicri:level="4"><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Clinical Neurology, Institute of Neurology, University of London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName><orgName type="university">Université de Londres</orgName></affiliation></author></analytic><monogr></monogr><series><title level="j">Movement Disorders</title><title level="j" type="sub">Official Journal of the Movement Disorder Society</title><title level="j" type="abbrev">Mov. Disord.</title><idno type="ISSN">0885-3185</idno><idno type="eISSN">1531-8257</idno><imprint><publisher>John Wiley & Sons, Inc.</publisher><pubPlace>New York</pubPlace><date type="published" when="2001-03">2001-03</date><biblScope unit="vol">16</biblScope><biblScope unit="issue">2</biblScope><biblScope unit="page" from="280">280</biblScope><biblScope unit="page" to="285">285</biblScope></imprint><idno type="ISSN">0885-3185</idno></series><idno type="istex">45F526F16968B1ECFE812C66F81E7B0047B57565</idno><idno type="DOI">10.1002/mds.1055</idno><idno type="ArticleID">MDS1055</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0885-3185</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Aged</term><term>Attitude to Health</term><term>Evaluation</term><term>Female</term><term>Human</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Patient</term><term>Perception</term><term>Quality of Life</term><term>Questionnaire</term><term>Questionnaires</term><term>Self Concept</term><term>Social impact</term><term>Spasmodic torticollis</term><term>Stereotyping</term><term>Stigma</term><term>Torticollis (psychology)</term><term>perceived stigma</term><term>spasmodic torticollis</term><term>stigma questionnaire</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Torticollis</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Aged</term><term>Attitude to Health</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Quality of Life</term><term>Questionnaires</term><term>Self Concept</term><term>Stereotyping</term></keywords><keywords scheme="Pascal" xml:lang="fr"><term>Evaluation</term><term>Homme</term><term>Impact social</term><term>Malade</term><term>Perception</term><term>Questionnaire</term><term>Stigmate</term><term>Torticolis spasmodique</term></keywords><keywords scheme="Wicri" type="topic" xml:lang="fr"><term>Homme</term><term>Impact social</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Little is known about the “stigmatizing” effects of Spasmodic Torticollis—a condition that produces physical disfigurement. This is important in understanding the social dimensions of this disorder. This study examined the presence, the dimensions, and the degree of perceived stigma in patients with Spasmodic Torticollis. The study was completed in two stages. In the first stage, ten patients were interviewed to identify the effects of their condition on their social interactions. In the second stage, a self‐rating measure of stigma and questions about the impact of the condition on the patients' lives were devised. Perceived stigma was defined as avoidance of others, avoidance by others, self‐consciousness, feeling unattractive, feeling apologetic, and feeling different from others. The questionnaires were sent to one hundred patients. The majority of the patients perceived “some” or “severe” stigma. Stigma was found to affect the patients' social, private, and working lives. It is suggested that stigma in Spasmodic Torticollis needs to be considered as a parameter relevant to the clinical management of these patients. © 2001 Movement Disorder Society.</div></front></TEI><affiliations><list><country><li>Royaume-Uni</li></country><region><li>Angleterre</li><li>Grand Londres</li></region><settlement><li>Londres</li></settlement><orgName><li>Université de Londres</li></orgName></list><tree><country name="Royaume-Uni"><noRegion><name sortKey="Papathanasiou, Ilias" sort="Papathanasiou, Ilias" uniqKey="Papathanasiou I" first="Ilias" last="Papathanasiou">Ilias Papathanasiou</name></noRegion><name sortKey="Jahanshahi, Marjan" sort="Jahanshahi, Marjan" uniqKey="Jahanshahi M" first="Marjan" last="Jahanshahi">Marjan Jahanshahi</name><name sortKey="Macdonald, Lea" sort="Macdonald, Lea" uniqKey="Macdonald L" first="Lea" last="Macdonald">Lea Macdonald</name><name sortKey="Papathanasiou, Ilias" sort="Papathanasiou, Ilias" uniqKey="Papathanasiou I" first="Ilias" last="Papathanasiou">Ilias Papathanasiou</name><name sortKey="Whurr, Renata" sort="Whurr, Renata" uniqKey="Whurr R" first="Renata" last="Whurr">Renata Whurr</name><name sortKey="Whurr, Renata" sort="Whurr, Renata" uniqKey="Whurr R" first="Renata" last="Whurr">Renata Whurr</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Santé/explor/MovDisordV3/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 004727 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 004727 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Wicri/Santé
|area= MovDisordV3
|flux= Main
|étape= Exploration
|type= RBID
|clé= ISTEX:45F526F16968B1ECFE812C66F81E7B0047B57565
|texte= Perceived stigma in Spasmoic Torticollis
}}
| This area was generated with Dilib version V0.6.23. |  |